Wednesday, February 6, 2013

2/6/13 Update

I suppose I'll go ahead and write my daily update. Alison has been zonked out since about 3:30 this afternoon with no signs of letting up! She got a shower this morning - which is actually a lot of work. And at noon, the engineers from Invotek http://www.invotek.org/ showed up to assess Alison's access abilities. These guys heard about us through a fantastic assistive tech doctor at Madonna in Lincoln. They are based out of Fort Smith, Arkansas, and specialize in helping people with disabilities figure out ways to access their world better. They were actually impressed by all that Alison could actually do. With her head, left hand and left foot movements, they have a few different ideas that should help her communicate more effectively with us. They've most recently helped a young man, who also suffered a severe brain stem stroke, begin communicating again and he was only able to look up and down. But they figured it out! They have a non-profit spinoff called Be Extraordinary http://www.be-x.org/ that helps provide funding for the expensive equipment often needed for situations like this. It's really pretty impressive and I encourage you to check them out if you get a chance. But they spent most of the afternoon with us and tested all kinds of options while brainstorming original ideas. It'll probably take a month or so to come back with some actual things to test, but we're off to a good start! This evening she's just been resting and I've been getting caught up housework. But all is well. Thanks for your continued support.

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