Monday, December 31, 2012

12/31 Update

Alison and I have had an alright day today. Nothing real exciting - just staying out of the snow. Tonight we watched the early part of the Times Square festivities before calling it a night. Happy New Year everyone.

Sunday, December 30, 2012

12/30 Update

It's been a good day for Alison and I. We went over to our apartment and watched the latest Batman movie and hung out for a bit. About halfway through the movie, out of nowhere, she started spelling things about where certain things should be hung on the walls. It was obvious she wasn't into the movie much, and I've been looking forward to her input on decorating. When we got back to the facility, she reminded me that I'd left the dome light on in the van - which I had. She's pretty handy to have around. We're bracing for the stow storm tomorrow. Everyone be careful. Thanks for the continued support.

Saturday, December 29, 2012

12/29 Update

So Alison and I had a pretty good day today. We didn't do a whole lot. It was pretty cold out, so we opted to stay in today. Tomorrow is supposed to be a bit warmer so we'll probably get out a bit. But all's well. Thanks for the continued support.

Friday, December 28, 2012

12/28 Update

So Alison seems to have had a pretty good day today. We had a nice visit over lunch. And this evening we just hung out and had a good time. At one point tonight she spelled out, "I've decided we're going to move to Jamaica." I asked when and she spelled, "Tomorrow." So it was nice knowing everyone, but she's the boss - so long! (There's a nurse aide from there and her accent and stories of home certainly prompted that comment.) Later we were listening to some music, and I positioned my phone next to her thumb and she was controlling the music by advancing to the next or letting it play. On two different songs she totally hummed along at certain parts. I asked if it was intentional and she said it was. It's very difficult to control her voice, but every now and then it shows signs of hope. I told her we're going to listen to Home, by Edward Sharp and the Magnetic Zeros everyday because it's happened twice on that song now. Tomorrow we're going to break out Princess Dy. It's been a while since she's used her assistive tech computer, but we have a new switch contraption we want to try out. If it works as we're hoping, it could be a more simple way for her to use it more effectively and more often to communicate. We'll see. But it's been a good day. Thanks for your continued support.

Thursday, December 27, 2012

12/27 Update

It sounds like Alison's had an okay day today. She had a full day of therapy that went pretty well from what I can tell. This evening we've just been lounging around catching up on the day. And she's getting a shower tonight, and that's always nice. But all's well tonight. Thanks for your continued support.

Wednesday, December 26, 2012

12/26 Update

So Alison and I have had an alright day. She opted to pass on therapy today, but said she'd get back on it tomorrow. She's been in pretty good spirits today though. This evening we did some research on how we might be able to use the iPad to get her connected to the world once we go home. There aren't as many options as you might think, but there are some. Technology has come a long ways and we can't wait to get her connected again. We've been waiting until we got home since it will take some specialized equipment. But we're hopeful it's right around the corner and we're getting ready. Thanks for your continued support.

Tuesday, December 25, 2012

12/25 Update

Well Alison and I have had an okay day today. If you were looking at Christmas as today only, it wasn't great. But over the last four days, our Christmas had been pretty good. Today started out pretty rough. When I arrived to see Alison this morning she was pretty emotional. It's no more than can be expected given the circumstances, but it was pretty rough. We eventually leveled out and lounged around watching TV until going over to our apartment this afternoon. We were blessed with the company and food of our friends Sarah and Kelsey. Kelsey prepared quite the Christmas dinner for us and it was delicious. It was good to spend some time away from the facility and with friends today. Thank you both. This evening we just lounged around some more. I was able to keep Alison awake for the most part tonight - unlike the last two evenings. ; ) But it's been an alright day. It wasn't the Christmas we'd been used to. But not much is as it once was. Thanks for your continued support.

Monday, December 24, 2012

12/24 Update

So Alison's having another sleepy evening. Today we went over to our apartment and she hung out with our friend, Sarah, while I ran some errands. It's always nice to get out for a bit - even if it's ridiculously cold outside. But that's pretty much been our day. She's supposed to get a shower this evening, so she'll be getting woken up pretty soon I'm sure. And, unfortunately, there won't be a slumber party tonight after all. : ( They jumped the gun on the neighbor going home; she'll be staying a bit longer now. That stinks, but Alison took the news really well. Tomorrow we're planning on hanging out at our apartment again in the afternoon. But today was good, and tonight all is well. Thanks for the continued support.

Sunday, December 23, 2012

12/23 Update

So Alison and I have had a pretty good day today. We spent the morning and afternoon at her brother's house again with family. We enjoyed a nice meal together before going our separate ways. That's the extent of our formal holiday plans. The next two days will be pretty low key. The rest of today has been restful. Alison basically slept all evening while I watched TV - which is okay with me. We heard today that our roommate should be leaving tomorrow. : ) That made us pretty excited. We'll get to have a slumber party Christmas Eve! But all's well tonight. Thanks for your continued support.

Saturday, December 22, 2012

12/22 Update

Well Alison and I have had a pretty good day together. We spent almost the entire day at her brother's house hanging out with family. It was a great time with lots of laughs. We had an especially good time doing some Mad Libs. : ) And opening presents is always fun. Alison is now a formal resident of Johnson County, Kansas. She received the official uniform tonight - the black North Face jacket. Lol. And we even stayed out past 10pm for our first time in a while. But all's well. Thanks for the continued support.

Friday, December 21, 2012

12/21 Update

So Alison's had an alright day today. She had a couple solid therapy sessions and we had a nice time hanging out this evening. The roommate isn't bad at all. But the lack of privacy takes some getting used to. Tomorrow we're looking forward to hanging out with family. But all's well. Thanks for your continued support.

Thursday, December 20, 2012

12/20 Update

Well, Alison's had kind of an up and down day. The weather this morning caused a delay with her friend visiting, but luckily Janie was able to come later and stay all afternoon and into the evening. That was fantastic. But this morning, we also found out Alison would be getting a roommate today. So around 2pm her new roommate arrived. So far it hasn't been too bad - all things considered. But it's definitely different than we're used to. So that's caused a bit of discomfort today, but we'll be okay. She got a shower this evening and will hopefully sleep well tonight. Thanks for your continued support.

Wednesday, December 19, 2012

12/19 Update

So Alison's had an alright day today. She hung out with her brother this afternoon and her friend, Amy, later this afternoon. This evening we've just been hanging out and catching up. Her good friend, Janie, will be here tomorrow and we're very much looking forward to it. But all's well. Thanks for your continued support.

Tuesday, December 18, 2012

12/18 Update

Well Alison's had an alright day today. During speech therapy, she ate an entire serving of peach yogurt! That's pretty dang impressive in my opinion. Otherwise, not a whole lot of excitement today. This evening we just took it easy. But all's well. Thanks for your continued support.

Monday, December 17, 2012

12/17 Update

Well Alison's had a pretty good day today. She hadn't had any therapy by the time I arrived at lunch, but she was off to the standing frame as I was headed back to work. When I got here after work, I found evidence of chocolate ice cream around her mouth and she was all giggles and smiles. A note from the speech therapist confirmed she'd had about 12 bites of chocolate ice cream and she tolerated it well. : ) Next, she proceeded to tell me she'd set a new personal best for time in the standing frame - 20 minutes! Needless to say, she's been pretty happy this evening. She's getting a shower at the moment and all is well. Thanks for your continued support.

Sunday, December 16, 2012

12/16 Update

Alison and I have had a nice, relaxing day. After sleeping in and lounging around this morning, we hung out with a friend at our apartment this afternoon. Unfortunately, we had to watch the Bears lose to Packers. Ugh. After that, we went back to the facility and took a nap. This evening we just lounged around watching TV. Alison was pretty sleepy and was out around 8:30. But, overall, it was a good day. Thanks for the continued support.

Saturday, December 15, 2012

12/15 Update

Alison and I have had a pretty good day together. This morning, her dad and stepmom came to town to return our dog that they watched while I was out of town. Then this afternoon, Alison and I ventured out to see the movie, Argo. It was pretty good. This evening we just took it easy and are now settled in for the night. But all's well. Thanks for the continued support.

Friday, December 14, 2012

12/14 Update

Home, sweet home. I made it back to KC this afternoon and was very excited to be reunited with my bride. : ) She was equally excited to see me, and we've been hanging out and catching up ever since. It's nice to come back on a slumber party night too. : ) And it sounds like she's had a pretty good day before I got back. A friend stopped by this morning just before going to have a baby (thanks again, Julie). Then our friend, Amy, came by for a bit around lunch and reported Alison did another 16 minutes in the standing frame AND 15 minutes on the bike. They are working this girl hard! In other, not so exciting news, it sounds like we'll probably get a roommate next week. The facility is filling up again. They let us have the weekend together, but we're bracing for less privacy by next week. We'll see how that goes. On the coming home front, it sounds like things are beginning to progress again. We've been able to involve some folks higher up at the state level and are hoping to see even more progress next week. But all's well tonight. And thanks for all the support from everyone while I was out of town. I wouldn't have been able to do it without you.

Thursday, December 13, 2012

12/13 Update

So it sounds like Alison had an alright day today. She had a nice visit from our friend, Amy, this morning. Then her brother spent the afternoon with her. And this evening, two of her girlfriends spent the evening with her. There was a Christmas party at the facility, so she got to see Santa and hear some carolers too. We're both ready for me to be back though. By the end of the day, I'll have worked nearly 17 hours. Again, I'll be ready to be back tomorrow. We have an early flight home in the morning. So I should be back in KC by mid afternoon. But all's well. Thanks for your continued support.

Wednesday, December 12, 2012

12/12 Update

So the word from KC is that Alison had a pretty good day today. Her dad reported she set a new personal best in the standing frame today - 16 MINUTES!! He sent me a picture and she looked so happy and pretty standing up today. This evening she hung out with her brother and it sounds like they had a nice time together. But when I talked to them earlier - all was well. It's been a long day of work for me, but it's going well. One more full day tomorrow should wrap it up - just in time to catch our flight home Friday morning. Thanks for your continued support.

12/11 Update

Well I made it to Las Vegas for the marathon of catalog press checks that start in the morning. But I was able to see Alison a couple times today before I left, and she was doing pretty good. Her dad spent the day with her, and will be back in the morning. He's hoping to get to see her show off in the stander tomorrow. I hear she got a bit emotional toward the end of the evening tonight, but overall she had a good day it seems. With the two hour time difference, I'm pretty tired and am about to hit the sack. But thanks for your continued support.

Tuesday, December 11, 2012

12/10 Update

First of all, I apologize for not getting my update out last night. I have to leave town for work this afternoon and I had packing on the brain when I got home last night. I'll be gone until Friday afternoon, but we have friends and family that will be helping out with Alison in my absence. But yesterday she supplied me with a good high note to leave on. If you'll remember her first time in the standing frame last Thursday, she was up for five minutes. Well yesterday, she made 11 minutes look easy. : ) She did really well again, and probably could have gone longer had we let her. I wouldn't be surprised if by the end of the week she's up to 20 minutes! Last night we just took it easy. It's hard to leave her, but I really need to go on this trip, and I know she's in good hands. I'll stop by this morning and around lunch on my way out of town. Thanks in advance to all who'll be helping while I'm gone. And thanks for all of your continued support.

Sunday, December 9, 2012

12/9 Update

Well Alison and I have had another good day. We slept in some, finished watching The Color Purple, then a friend came by and we all went over to the apartment and hung out for a bit. After that, we came back and took a nap before I had to go get some dinner. This evening she got a shower and we just watched some TV. Nothing too exciting, but pretty restful. Thanks for your continued support.

Saturday, December 8, 2012

12/8 Update

Well Alison and I have had a pretty good day together. We both slept well last night. And this morning I was able to run some errands before coming back before lunch. We didn't do a whole lot this afternoon. But our good friend Holli stopped in for a visit. This evening we watched the first half of The Color Purple. Neither of us had ever seen it. And when that fact came up during a conversation with one of the aides here, the next thing we knew, we had the movie. It's not a light movie, but it's pretty good so far. But we're all hunkered down for the night. Thanks for your continued support.

Friday, December 7, 2012

12/7 Update

So Alison's had a pretty good day today. When I came over at lunch, they'd just finished with the standing frame. Neither Alison or I expected they'd be back at it after just one day, but they were. They didn't have as much help, so it was a bit more difficult to get her situated in the stander. And, as a result, it wasn't quite as successful this time. Had I known they'd be doing it, I could've come to help. We'll all get better with practice. In speech therapy, she had 10 bites of ice cream. Lucky. And her friend, Amy, stopped by this afternoon for a bit. Tonight we had a double date with Alison's brother and his wife. We all went to see the new Twilight movie. I must admit, I was pretty entertained. And the theater we went to was perfect for us. I have a feeling we'll be going back soon. But we had a lot of fun this evening and are slumber-partying it up tonight. Thanks for the continued support.

Thursday, December 6, 2012

12/6 Update

I've had a Gloria Estefan song stuck in my head all day. "Get on your feet..." - you know the one. Today, Alison got on her feet with the standing frame for the first time in probably seven months. They said she might not tolerate it well, that she might not even make it all the way up, or might only last one minute, or might even pass out since it's been so long. Well, she tolerated it very well and lasted about five minutes! She was even keeping her head up on her own. Keep in mind there are a lot of pieces helping with this process, but she really did well. I can remember her looking like a wet noodle last time we did it - with people supporting her on all sides and angles. But she's come a long ways since then. We'll have access to this stander at the facility for about a month where she'll be using it at least three times a week. In the meantime, I'll get all the accessories for our stander at home (same model) ordered so it'll be ready to use when the loaner is gone and she comes home. Getting her upright has so many benefits. It will help continue to build muscle in her legs, neck and core, help with balance and more. Alison was really excited and did so well. It was awesome to see her upright and holding up her head with no assistance at all. It's been a good day. Thanks for the continued support.

Wednesday, December 5, 2012

12/5 Update

Well Alison's had an alright day today. She was pretty tired and opted to stay in bed all day. But she still had a good occupational therapy session where the therapist left a note with some encouraging words of impressive new movement in her right hand and improved strength in her left. : ) I had noticed the new movement in her right hand just the other day, and it's pretty impressive - especially considering there's been none at all for eight months. Otherwise, we've just been taking it easy. But all is well. Thanks for your continued support.

Tuesday, December 4, 2012

12/4 Update

Well Alison's had a pretty good day today. The note from her speech therapist said she enjoyed some puréed sweet potatoes and green jello during their session - which she handled pretty well. This evening, a few girl friends stopped by and hung out, while I joined the husbands for a movie. We watched The Expendables 2. It's a good guy movie and provided for some good laughs. Alison was pretty tired after her visit tonight though, and it wasn't long before she was ready for bed. But all's well. Thanks for your continued support.

Monday, December 3, 2012

12/3 Update

Well, on this day of my birth, Alison seems to have had a pretty good day - as have I. (Thanks for all of the kind wishes, by the way.) Alison had a nice visit from her brother and his wife this afternoon. When I arrived this evening, I found gifts from them and Alison waiting for me. She's so thoughtful. She had them get me a winter pea coat. We've talked about me getting one for years - and it just never happened until this year. But we've had a nice evening together. Thanks for your continued support.

Sunday, December 2, 2012

12/2 Update

Well Alison and I had a pretty good day together. We slept in a bit before her brother and his wife stopped in for a visit. Not long after that, Alison and I went out to get a frosty. She continues to impress me at how well she handles those. I told her it wouldn't be long before we won't be sharing them anymore. Rather, she'll have her own. : ) After that, we drove around Shawnee Mission Park for a bit. As we were leaving, I asked of she was ready to go back, and she said no. So we continued to drive around. I had to stop by the apartment, and on our way, she fell asleep in the van. It was pretty cute. : ) She woke up when we got there, but we didn't stay long. We did stop by and saw a friend on our way back, and that was nice. This evening she got a shower before going to bed. She looked awfully comfy when I left. But it's been a nice weekend. Thanks for the continued support.

Saturday, December 1, 2012

12/1 Update

Well Alison and I have had a pretty good day today. This morning we slept in a bit. Then I went and had breakfast with an old friend across town, and Alison watched some house flipping shows on TLC. When I got back we laid around a bit more before getting up and around. After lunch, we headed out on the town. We ended up surprising her brother, Jeff, by showing up in his driveway. The two of us managed to get her in his house and proceeded to hang out for a while. It had been a long time since she'd been there, so it was pretty cool. : ) After that, we stopped by another friends house who happened to be outside as we drove by on the way back. That, too, was unplanned, but turned out well. So we were out for over three hours today, and Alison was ready to lay down. I headed out to get dinner and found her sleeping when I returned for our slumber party. She woke up like she usually does when I get there, but proceeded to fall right back asleep. So that was our night. I laid in bed watching Pit Bulls and Paroles and played on my phone and she slept all evening. : ) There's nothing wrong with that at all. So we're all about to be snoozing soon. Hopefully she'll be able to rest through the night. Thanks for your continued support.