Friday, November 30, 2012
Well Alison seems to have had an alright day today. She opted to take the day off from regular therapy - which is alright every once in a while. She did do some PT work with our friend, Amy, this afternoon. And this morning, Alison had a nice visit from a couple gals from our church. We spent the evening with Alison telling me about a few dreams she's had recently. It was very entertaining. I told her we could write a good soap opera with the stuff she dreamt. We've had a nice evening together, but we're all hunkered into bed now. I've decided to stay the night on both Fridays and Saturdays now, and I'm glad I did. Thanks for your continued support.
Thursday, November 29, 2012
Well Alison seems to have had an alright day today. She had a few good therapy sessions, but I didn't get much detail on them. And she had a nice shower this evening. Then we watched an episode of Revenge. So not a real eventful day, but it was good. Thanks for the continued support.
Wednesday, November 28, 2012
Alison's had a pretty good day today. When I arrived at lunch time, she was already finished with therapy. She had a PT/OT co-treat session where they continued to work on sitting upright and leaning forward, back and side to side. The therapists get so excited at how well she's doing. When I'm not there, it's hard to know for sure how she's doing. But the PT stopped in today to tell me all about it. And it really sounds impressive. This evening, we had a few friends stop in for visits and that was nice. The rest of the evening we just hung out and got caught up on the day. But it's been a good one. Thanks for your continued support.
Tuesday, November 27, 2012
Well Alison's had an alright day today. She had a couple good therapy sessions, and she received a custom pair of modified shoes from an orthopedic company. They were her shoes but modified to accommodate her right ankle that has yet to come to a neutral, natural resting position. These shoes will allow her to more safely and comfortably bear weight through her legs when standing. In the next couple of weeks, we'll be getting a demo standing frame brought in for her to try. It'll be the same kind we have at the apartment, but it will have all the extra support pieces that ours currently lacks. This demo unit and trial run will tell us what Alison will need for our stander when she comes home. It'll also train us on how to safely use it with her. But it seems to have been an alright day though. Thanks for the continued support.
Monday, November 26, 2012
Sunday, November 25, 2012
Saturday, November 24, 2012
Alison's word to describe our day was, "happy." : ) We had a really good trip to see her side of the family and friends down in Buffalo, MO. She handled the ride like a champ, and really enjoyed seeing everyone - as they did likewise. A funny story from the day was on our way there this morning. Before we left, I told her I would occasionally ask her how she was doing, and if, for any reason she needed me to pull over for something, I'd be glad to. So we were about an hour outside of Buffalo, and I reached over to grab her hand and asked if she was doing okay. No thumb raise. I asked if I needed to pull over. Thumb up. So I pulled over on the side of the highway and we started spelling so she could tell me what was wrong. S-T-O-P B-I-T - at that point I knew I'd been busted. She was telling me to stop biting my nails. It's long been a bad habit of mine - especially while driving, that she's always got on to me for. Some things never change. : ) I called her a twerp and we kept going - and I stopped biting my nails. By the time we headed home, she was pretty tired and slept a lot of the way. And she was definitely ready to lay down when we got back. It wasn't long before she fell asleep. Piper and I aren't far behind her. But it's been a really good day. Thanks for your continued support.
Friday, November 23, 2012
Alison and I have had an alright day. No crazy shopping experiences here though. She had physical and speech therapies today. The PT was talking about how well she did leaning forward and back - as she has been, but now doing well with the side to side movement too. : ) Otherwise, not much went on today. She got a shower and we laid around watching TV some tonight. Tomorrow is our big road trip to Buffalo, MO. We're pretty excited for it. We plan on leaving about 9am and being back around 6pm. It'll be about six hours total on the road and over nine hours up in the chair. It'll be a stretch, but we think she's up to it. It'll be great to see family. Thanks for your continued support.
Thursday, November 22, 2012
Well Alison and I had a pretty good day today. This morning, we laid around and watched the Macy's parade before going to the movies. Flight was good, but a bit heavier than we expected. But she did well. After that, we came back and Alison laid down to rest for a bit while I grabbed dinner and the slumber party supplies. On my way back, I picked up a piece of pumpkin pie from Perkin's for us to share. It was surprisingly delicious and Alison and I thoroughly enjoyed it. Tonight, we got caught up on watching Parks and Rec. So it wasn't our typical Thanksgiving day, but not much in our lives is as it used to be. It'll be good to see family on Saturday when we go to Buffalo. Tomorrow there's not a whole lot planned - and that's just fine with us. Hope you all had a great Thanksgiving, and thanks for your continued support.
Wednesday, November 21, 2012
Well Alison's had another good day today. When I came at lunch, she was in another PT/OT co-treat session where they were continuing to work on core strength. They, again, were full of compliments about how well she's doing. They were saying they could feel muscles activating all down here spine, so that's good. And during speech therapy, they began oral trials again - today with two bites of thickened apple juice. They had stopped after the aspiration pneumonia from our last hospital visit. But Alison told the therapist about the frosty this weekend - which was supposed to be a secret... But apparently she's coming around - tomorrow she said Alison could have two bites of pumpkin pie! We had a meeting over lunch to discuss discharge plans. Unfortunately we're still in a waiting game with Medicaid. With all the changes going on there, everything's a mess. We'll either get home in the next 2-3 weeks, or it'll be after the first of the year (which we obviously don't want). On a better note, we still don't have a roommate and it sounds like there are quite a few beds opening up in the next few days. Maybe we've dodged a bullet... In the meantime, we're going to have as many slumber party nights as we can - starting tonight. : ) For Thanksgiving day, we're going to the theatre to watch Flight, so that should be fun. And Saturday we're taking a road trip to Buffalo, MO, to spend the day with her family. But all's well. Thanks for the continued support.
Tuesday, November 20, 2012
Well Alison's had a pretty good day today. When I got here at lunch, she was down in therapy with OT and PT. They were having her lean forward, from her chair, onto a table, and bearing weight on her arms, then having her lean back - all while keeping her head controlled and supported. She needed assistance, but she was certainly helping a good deal. The therapists seemed pretty impressed - as was I. Her brother came to visit this evening while I worked late. It's getting pretty busy at work, so it's good I can do that sometimes. But all's well tonight. Thanks for your continued support.
Monday, November 19, 2012
Well Alison was in a really good mood all day long. She was up and at 'em early for her Botox appointment, and that went really well. Afterwards, she was still in a good mood, but opted to lay down and take the day off from most of her therapies. After getting stuck with needles all over her body, I don't blame her. But she did get a bit of PT this afternoon from our friend, Amy. This evening, we just hung out and took it easy. I'm constantly impressed by her in so many ways. Tonight, I was talking about this spot along her hairline that we've been treating with dandruff shampoo for a minor skin condition. But I had long forgotten the name of it. So she proceeded to spell out some crazy word that ended being the name of it. You can imagine my confusion as she's spelling S-E-B-O-R-R... It's seborrhea. I couldn't believe she remembered that. But she's always had a lot better memory than I. But it's been a good day. Thanks for your continued support.
Sunday, November 18, 2012
Well Alison and I have had another good day. We slept in and watched some TV this morning. Tomorrow morning she has a second Botox appointment at 9am. I'm out of PTO at work, so a nurse friend of ours is going to take her. So after lunch today we did a dry run with her loading Alison in the van and driving it across town. It went really well and we feel very comfortable with things. After that, Alison and I just laid around watching TV before taking a nap together. This evening she got a shower and seemed pretty relaxed and sleepy afterwards. But it was a good day and a good weekend. There's a pretty good chance we'll be getting a roommate this week, so we're bracing for that. Thanks for the continued support.
Saturday, November 17, 2012
Alison and I have had a pretty good day together. Weekends are the best. After our slumber party last night, we slept in and watched TV for a while. Then her brother and his wife came by and we all went to a park and walked around for a bit. After that, we drove through Wendy's for a frosty. Then we went through the car wash before coming back. Alison hasn't had a frosty in quite a while. But she handled it very well and ate a lot more than I expected her to. After our last hospital stay, they've been very cautious with food trials, as they don't want to risk aspiration. But I knew she could handle it, and today was proof. I was really happy to see her enjoy one of her favorite treats. Later in the day, one of her friends stopped by that hadn't seen her in a while, so that was really nice. And tonight, we're just catching up on TV shows and cuddling in the bed. But all's well. Thanks for your confined support.
Friday, November 16, 2012
Well Alison's had an alright day today. I was amused over lunch because she and her therapists decided it was time to move away from the thumb for yes/no responses. Rather, she should use her head to nod for yes or shake for no. Her side to side shake for no is pretty good, but the up/down nod for yes is a bit more difficult. So before I went back to work, I tried to reason with her, "I'm just going to run through a few quick questions, so we'll just use your thumb because it's faster, okay?" She shook her head no. It was pretty funny. For now, we agreed to use the thumb up for yes and spelling, and the head shake for no. We'll continue to work on the head nodding. Tonight I found her pretty uncomfortable when I arrived after work. She's been having some pressure in her bladder that's been bothering her. The best they could tell, it might have been a full stomach causing the pressure. Hopefully by morning it'll have passed. And she talked me into having a slumber party weekend, instead of just Saturday. We're taking advantage of not having a roommate yet and having all the sleepovers we can. They tell us the entire building is full - except for the extra bed in her room. But they said we won't get a roommate this weekend, but probably next week. Like I said before, we're really lucky to have had a private room this entire time, so it's hard to complain too much. But all's well tonight. She's resting and me and Piper just settled in for the night too. Thanks for your continued support.
Thursday, November 15, 2012
Well Alison's word for describing her birthday is "special." Her dad, brother, sister in law, aunt and uncle came to visit. And lots of others sent cards, gifts and well wishes her way. We are both very grateful for the love and support from everyone. We didn't do a whole lot tonight. We opened some gifts, read some cards, messages and texts that came in throughout the day (there were a lot). But she had a really good day - did really well in therapy. Her family was pretty impressed by some of her work today. Her head and eye control, and her work on the bike, continue to improve. She should rest well tonight after a full day. Thanks for the continued support.
Wednesday, November 14, 2012
Well Alison's thankfully feeling better today. She told me tonight that she thinks she got sick from paint fumes. They had painted some trim in her room yesterday, so that explains a lot. She's been able to keep everything down since then though. But we did get a bit of not so great news today. We've been fortunate to have a private room for essentially the entire time she's been in a facility (8 months now). But today we were told they have filled every female bed in the facility except the empty one in her double room. So we're apparently going to be getting a roommate - probably tomorrow. Neither of us were very happy upon learning this, but we'll survive. It just makes things like slumber party Saturday nearly impossible. Hopefully we'll be home soon and it'll be a moot point. But for now, it's not much fun to think about. And there's a chance her roommate will be really nice, but there have also been some pretty wild residents come through. So as long as her roommate isn't crazy, we'll be okay. This evening was spent cleaning up so the other half of the room, the closet and the bathroom is free of our stuff. Good times. But Alison's Aunt Sally and Uncle Marty are coming to visit for Alison's birthday tomorrow, so that will be nice. That, paired with some nice cards, flowers and gifts will hopefully offset the stress of a roommate. Thanks for your continued support.
Tuesday, November 13, 2012
Well Alison's had an alright day today. She had a couple decent therapy sessions. She told me there was 20% improvement on her right leg on the bike in PT today. That's pretty impressive. But I was also told she was pretty emotional throughout the afternoon. When I got there tonight, she was sad. We were able to talk through it though, and she was okay. We got a late start to watching the latest episode of Revenge, so we asked they hold her food and meds until about 9 when we'd be finished, and they did. So a little after 9 they came back, and as soon as the food and meds hit her stomach, it came right back up. : ( She hasn't been sick for over a month now, and had been feeling good all day. This came out of nowhere. They took her temp, and it was good. And after she got it out, she said she felt okay. So they're keeping a close eye on her tonight. Please pray this was an isolated incident, and not the first symptom of something worse on its way. Thanks for your continued support.
Monday, November 12, 2012
Well it sounds like Alison's had a decent day. She really only had occupational therapy today, and she did well. She's really doing well with head and eye control. And we have a new case manager handling our efforts to go home, and it really sounds like she's on it. Hopefully we'll be headed that way before long. Tonight we watched Revenge online. We're now only one episode behind. But not a bad day overall. Thanks for your continued support.
Sunday, November 11, 2012
Well Alison and I have had a good and lazy Sunday. We literally laid around all day long. It wasn't until tonight that she got up - and that was just for a shower. But with the weather turning so cold, it was a good day for it. I guess we did have some physical therapy this morning, so it wasn't completely lazy. Thanks for your continued support.
Saturday, November 10, 2012
So Alison and I had a really fun day together. This morning we laid around in bed catching up on one of our TV shows. Then I grabbed some lunch and came back to take her out. We were originally just going to go to our apartment to watch TV, but as we got on the road, we decided to drive around a bit. My original suggestion was that we go get lost downtown. Exploring new places in the city had always been something we enjoyed. So as we were heading north, I remembered a new soda and sandwich shop on the west side that we'd been wanting to go to. On our way there, we noticed an airplane on the top of a building. We tracked that down to find the Roasterie Coffee factory. Then we went and got a blackberry lavender soda from Little Freshie. It was a cool little shop, a delicious drink (which we shared) and we met some nice people. Then we headed to our apartment to watch an episode of our show before heading back to the facility. It was nearly dinner time by then. So I headed out to eat and grab our dog and the slumber party supplies. Tonight we watched The Candidate. It was pretty funny - better than the comedy from last weekend (That's My Boy). But I'm still not sure I'd recommend it to my mother. ; ) But it's been a really fun day. I was glad we could get out again and enjoy the great weather. Thanks for the continued support.
Friday, November 9, 2012
Well Alison and I have had a decent day, and a fun night. She had some good therapy sessions this afternoon. And this evening we went to a friend's surprise birthday party downtown. It was on the rooftop of a fancy loft overlooking the KC skyline. It was fun and beautiful. We met some new friends and had a nice time. We're back now and she's pretty tired. But it was worth the effort. Thanks for your continued support.
Thursday, November 8, 2012
Alison's had an alright day today. When I came over lunch, she was having a good occupational therapy session where they were working on eye control. She also had a good physical therapy session where they continued to build up core strength on the mat. Tonight we've just been lounging around in bed catching up on things. But all's well and we've had an alright day. Thanks for the continued support.
Wednesday, November 7, 2012
Well Alison's had an okay day today. It sounds like she had a couple good therapy sessions, and had a couple good visits from some friends and her brother. I had to work late tonight, so we just took it easy this evening. I went through and caught her up on all the crazy political status' from last night. That was entertaining. But all's well. Thanks for your continued support.
Tuesday, November 6, 2012
Well Alison and I have had a pretty good day today; she had a couple good therapy sessions. In physical therapy, they reported a 10% increase in her left leg performance on the bike. : ) This evening we just laid around in bed watching the election results come in. Alison voted in advance, and I casted mine this morning. Alison was pretty excited when I brought in a "I voted" sticker for her over lunch. There's not much she can do. So voting was especially important to her this time around. But all's well. Thanks for your continued support.
Monday, November 5, 2012
Well Alison has been a pretty sleepy girl today. At lunch her belly was hurting from where they replaced the feeding tube on Friday, so she asked for some meds that added to the sleepiness. But she did have some therapy today, and her dad came to visit. So I wouldn't call it a bad day. I got here a little after six, and she's been snoozing good the whole time. I'll probably head out in a bit and do some snoozing of my own. Thanks for the continued support.
Sunday, November 4, 2012
Well Alison and I have had a very relaxing day. Our slumber party was nice, and we lounged around in bed until after lunch today. And then, we only got up because a couple friends stopped by. But it was good to see them, and it was right back to bed afterwards. So lots of rest, lots of cuddling, lots of bad TV watching. No complaints. Some of you have asked about the status of her coming home. I wish I had better news to report, but it is still very much a waiting game. There are so many steps in the process - and each one takes time. And the last step was done incorrectly, so now we have to wait for it to happen all over again. Then there are still a couple more steps before we're ready. Needless to say, we're pretty frustrated. We'll get home when we get home. But I'm tired of getting my (and others') hopes up only to be let down. But we're not necessarily in a bad place right now. We're just ready to move on to the next step. Thanks for your continued support.
Saturday, November 3, 2012
Well we've had a pretty good day today. Alison's aunts were back this morning, and her cousin stopped by for a while today too. We had a nice time chatting and catching up with all of them. For slumber party Saturday, we watched a movie that wasn't all that great - That's My Boy with Adam Sandler a Andy Samberg. It was good for a couple laughs, but I wouldn't necessarily recommend it. But we're all in bed now and are looking forward to an extra hour of sleep tonight. Thanks for your continued support.
Friday, November 2, 2012
Well Alison's had an alright day today. Her appointment this morning went pretty good. Afterwards she wasn't in much of a mood for therapy so she just rested. They replaced both her catheter and her feeding tube. But it went well. This afternoon two of her aunts came for a visit. That was nice, and they'll be back in the morning. This evening we've just been taking it easy. No real big plans for the weekend. Thanks for your continued support.
Thursday, November 1, 2012
Well Alison's had an alright day. I didn't hear a whole lot about therapy, but she did get to hang out with her brother and his wife this afternoon. When I arrived this evening, she was just about to get a shower. That's always nice. Afterwards, they were getting her dried off and dressed when, while rolling her over, her feeding tube got pulled out. It was a little shocking, but not painful, and not an emergency situation. Fortunately, we have an appointment in the morning to check up on her still fairly new supra pubic catheter. So they should be able to reinsert it there. But otherwise, it's been a decent day. Thanks for your continued support.