Wednesday, October 31, 2012
Well Alison's had a really good day today. She had a few good therapy sessions, followed by a really fun evening with friends handing out candy to trick or treaters at their house. It was great to get out and enjoy some good company. We both had a really good time. Thanks for the continued support.
Tuesday, October 30, 2012
Monday, October 29, 2012
So Alison's had a pretty good day today. When I asked her to rate it on a scale of 1-10, she gave it an 8. : ) Her therapy sessions went well, and she's been in good spirits. Tonight wasn't too productive - just hanging out. But that's just fine. We're still trying to make progress on coming home. But Medicaid is in transition right now and everything is moving so slowly. But we are very ready to be home. If you're the praying type, please pray that things would align for her to come home ASAP. Thanks for your continued support.
Sunday, October 28, 2012
So Alison and I have had a pretty good day today. We didn't do anything overly exciting. Last night's slumber party was good. And we just hung out and watched tv most of the day. She got a nap this afternoon and a shower this evening, so that's always nice. Thanks for the continued support.
Saturday, October 27, 2012
Well Alison and I have had a pretty nice Saturday together. This morning was pretty unproductive. We hung out in bed for a while, then a friend came over and painted her toe nails and hung out for a bit. Then after lunch, we loaded up in the van and went over to our apartment for a bit. Last time she was there she'd just gotten out of the hospital and wasn't feeling so hot. Much better this time. She even helped me decide what things should go into storage. "That dang chair." is one of a few things that will be going. : ) When we got back, Alison had a make-up physical therapy session from one she missed earlier in the week. It went alright. This evening was nice and relaxing. For slumber party Saturday, we continued getting caught on one of our tv shows. But it's been a good day. Thanks for the continued support.
Friday, October 26, 2012
Well Alison's had a pretty good day today. She's been in pretty good spirits and had some good therapy sessions. This evening we've been lounging around watching TV. It's been a nice relaxing evening though. We don't have any real big plans for the weekend, and that's okay. Thanks for your continued support.
Thursday, October 25, 2012
Well Alison's had an alright day. We got a bit of a surprise visit from her dad and stepmom, and that was really nice. She had a couple good therapy sessions today and a relaxing shower this evening. We're still working on getting her home. The process seems to be inching along, but we're getting there. Thanks for your continued support.
Wednesday, October 24, 2012
Well Alison's had a pretty good day today. She had some good therapy sessions and has been in pretty good spirits. She had a visit from some girl friends this evening, and her brother and his wife came by earlier today. But all's well. Thanks for your continued support.
Tuesday, October 23, 2012
Well Alison worked hard in therapy today. Over lunch, I was able to be there for physical therapy where she did 15 minutes on the recumbent bike. The bike does assist some. But at the end it shows an activity log showing how much work was done by Alison versus the machine. Alison was doing 52% of the work. Not too shabby. So this evening she's pretty tired and we're just taking it easy. They said they'll be doing the bike three times a week. Good stuff. Thanks for your continued support.
Monday, October 22, 2012
Well Alison seems to have had an alright day today. She had some good therapy sessions and has been in good spirits. We were originally hoping Alison would come home by the end of September. When that came and went, I set a new goal for her to come home by today, 10/22. Well, that's not happening either. We still have everything in the works, but there are a lot of things that have to come together first. We're progressing, and I'm hopeful it will be very soon - maybe the next 2 weeks. We have a meeting tomorrow to discuss some things about our coming transition home. So it's in the works. And our apartment and care team are ready and waiting. Thanks for your continued support.
Sunday, October 21, 2012
Well it's been another good day for Alison and I, and a really good weekend as a whole. This morning we didn't do a whole lot - just laid around until it was time to get up and around for church (around 3pm, lol). But church this evening was great. It was so good to be back and Alison was welcomed with lots of love and warm, familiar faces. It got a little emotional a couple times, but nothing too crazy. And we had lots of good laughs too. : ) But I'd like to thank everyone that was there tonight to make it so special. We went for so long not having a church home before coming to KC. And I can't imagine going through this without our Redeemer fam. Thanks for all of your continued support.
Saturday, October 20, 2012
Well Alison and I have had a really nice day together. We got up this morning and headed across town to see our friend run in the KC marathon. We were out and about for over 2 hours and Alison did fantastic (so did our friend). Then this afternoon a friend came by and painted her nails while I got some lunch. This evening we watched the Avengers for our slumber party Saturday movie. It was good, and the two girls (Alison and Piper) are already sleeping. But it's been a good day, and we're hopeful tomorrow will be even better. We're planning on trying to go to church together tomorrow afternoon. It'll be the first time back (for her) since all this happened. But she says she's up for it, so we'll probably give it a go! It's exciting and nerve-racking at the same time. I'll let you know how it goes. Thanks for your continued support.
Friday, October 19, 2012
Well Alison's had another good day. She continues to show improvement in therapy. And tomorrow morning we're planning on getting up and going to cheer on our friend, Holli, who's running in the KC marathon. That should be fun. But it's been a good day and evening and we're looking forward to a fun weekend. Thanks for your continued support.
Thursday, October 18, 2012
Well Alison's had a pretty good day today. In therapy she told me she got to "ride the bike." They have a recumbent bike down there, so I guess that's what they did. But I could see how that could work. She's always had pretty good movement in her left leg, but she's beginning to get some better movement in her right leg too. So I'm looking forward to hearing more about it tomorrow. But it sounds exciting! Otherwise, she said she had a good day. And this evening a few girl friends stopped in for a visit and had a nice time. So not a bad day. Thanks for your continued support.
Wednesday, October 17, 2012
So Alison had a pretty good day today. She was in good spirits from start to finish. The appointment with the eye doc went well. Nothing huge was unearthed. But we did verify that she doesn't have double vision, but things at a distance are blurry. Her eyes weren't as relaxed as they can be, but the doc saw some good responses to queues he was giving. He thinks there's a lot of potential for improvement and sent us away with some simple eye exercises. After work, I discovered she'd had another really good speech therapy session. This time the therapist said she was making all kinds of good vocal sounds for her. And this evening a friend stopped by to hang with Alison while I had an event for work to attend. It sounds like they had a really nice time together too. So, all in all, it's been a good day. Thanks for your continued support.
Tuesday, October 16, 2012
Well it seems as if Alison's had a pretty decent day today. This morning we needed to address the non-draining catheter issue. Fortunately, they were able to replace it here at the facility. The other option was to send her out to the hospital to have it done. So that was a relief. And I arrived this evening to find her sleeping hard! I can usually stir her pretty easily by talking - but not right now! I can't bring myself to wake her though - especially when she's sleeping so well. But a note from the speech therapist said she had a good session this afternoon. It's funny, Alison spelled out for me this morning, "I don't think Janna (ST) realizes how much of a morning person I'm not." The next thing you know she was here for therapy! So we asked if she could come back after lunch, and she did, and they had a good session! Tomorrow we have an appointment with a neuro-optometrist that specializes in cases like ours. Alison's excited about the possibility. She can see, but she doesn't have complete control over her eyes and has a hard time focusing. We saw a similar doc when in Lincoln, but at that point she had virtually no control and it wasn't much help. She's improved quite a bit since then, so hopefully we'll get some help. Well, I suppose I'll sit here and stare at this pretty girl sleep for a while. (Creepy?) I wonder at what point should I wake her, or just let her sleep all night? We'll see... Thanks for the continued support.
Monday, October 15, 2012
Well it's been a pretty good day for Alison today. Her chest X-ray came back free of pneumonia, so that's good news! And she did better in her therapy sessions today too. This evening we're trying to figure out an issue with her catheter - it doesn't seem to be draining properly. It's not urgent at the moment, but we're keeping a close eye on it. We'll address it properly in the morning, but there's no sense it running to the ER at this point - and hopefully tomorrow we can stay away too. So hopefully all will go well there. But she was comfortable when I left, and they're keeping a close eye on her overnight. She said i shouldn't worry...so I'll try not too. Thanks for your continued support.
Sunday, October 14, 2012
Well it's been a pretty fun, fall day for Alison and I. This morning we took it pretty easy after our slumber party. And after lunch we went over to Shawnee Mission park with our friends Jonny and Amy. We had a really nice time walking along the lake, watching some sail boats, some ducks and enjoying the pretty trees. It was a bit breezy, but an overall nice fall day and Alison really enjoyed the outing. : ) It's so good that she's feeling better and we're able to do fun stuff like that every now and then. This afternoon she got a shower and a nap. And this evening we watched a few episodes of one of our tv shows, Revenge. Tomorrow morning she's slated for a follow-up lung X-ray to check the pneumonia situation. We're optimistic it'll show improvement. Thanks for your continued support.
Saturday, October 13, 2012
Well Alison and I have had a pretty good day together. We hung out by the open window this morning and listened to it rain and admired the colorful trees. That was pretty relaxing. Around lunch time, a friend stopped by and hung with Alison for a bit while I grabbed a bite to eat. Afterwards we hung out for a bit more before it was afternoon nap time. Since I'm not much of a napper, I went shopping for Alison. She's needing some cooler weather outfits and I know how much she loves wearing sweaters this time of hear, so I went to Target and picked up a few things. She's already asleep this evening, so we'll see what she thinks in the morning. Our plan for tomorrow is to take a ride in our van over to Shawnee Mission park to look at the trees. We're both looking forward to that. Until then, me, Alison and Piper are about to call it a night. Thanks for the continued support.
Friday, October 12, 2012
Tonight, our update is a funny story, accompanied by a picture. Yesterday, Alison tried telling me about a student that came in and said something about a beautiful daughter. I assumed she was talking to Alison's dad who was here yesterday morning. So no big deal. Alison's beautiful. Got it. This morning, first thing she tells me is that the student wasn't talking to her dad! The student saw pictures of cute little girl, Alison, and thought she was her daughter! We were cracking up at the story. She had me put a note on the wall above the pictures reading, "This is me and my brother as little kids." So tonight, she said, "Relative to yesterday, the student said she has her mom's hair." You can tell from the picture they certainly have the same hair. Lol. Good times, funny stories. : ) Otherwise, all's well. She's getting back into therapy and building up her strength again, and feeling a little better every day. We're hoping to maybe go for a ride in the van sometime this weekend if the weather cooperates. Thanks for your continued support.
Thursday, October 11, 2012
Well Alison has begun to slowly get back into therapy. She had a session of speech and occupational therapy and it went alright. She has a lot of ground to make up from being sick, but we'll get it going again. Alison's dad headed back today. But she's had an alright day. Thanks for your continued support.
Wednesday, October 10, 2012
Well Alison's had an alright day today. She didn't get into therapy, but she said tomorrow she's going to give it a shot. But she's doing a little better each day. So we're slowly, but surely, getting back on the recovery wagon. Thanks for your continued support.
Tuesday, October 9, 2012
Slowly but surely Alison seems to be rebounding from her 2 week stay in the hospital. Today she opted to get dressed and up in her chair for a while. She tolerated it well for 3-4 hours. Maybe tomorrow she'll be up for starting back into a little therapy. And her cough seems to be getting a little better too. Her dad got here this morning and will stay for a couple days. Overall, all is well. Alison's already snoozing so I'll bet she sleeps good tonight. Thanks for your continued support.
Monday, October 8, 2012
So it seems like Alison's had an alright day today. She's still coughing and feeling pretty crummy, but overall, she says she's feeling better. She decided to stay in bed today - and that's just fine. She did say she might be up for getting up and around tomorrow, so we'll see. Thanks for your continued support.
Sunday, October 7, 2012
So we got back to the facility yesterday afternoon, Alison got a shower, and was snoozing hard by 7:30pm. Around 4:30am, they had just fed her, were getting her repositioned and she threw up all the food they just gave her. We got her cleaned up and she did it again. And during all of that her temperature went up a little. So we were bracing for possibly having to go right back to the hospital. But she ended up not getting sick again, and her temp came down. They gave her some nausea meds and she was feeling quite a bit better. So crisis averted. Since then she's been coughing here and there, but that's all. And they've been able to slowly resume feeding. On a scale of 1 to 10, she says she feels like a 5. So we still have room to improve. As we start a new week, I'm guessing we'll not be rushing right back into therapy. She wasn't real eager to get up and around today - as you might expect. My mom spent the morning with her before heading home around noon. And her brother spent the afternoon with her while I went to my first Chiefs game. They lost - as expected, but I had a good time with a couple friends. The official countdown for home is on though. I'm planning on her first official full day at home will be on or around Monday, 10/22. Lets hope we can make that happen. Thanks for your continued support.
Saturday, October 6, 2012
Well we finally are out of the hospital! Late this afternoon we were discharged back to the skilled nursing facility. When Alison got secured into our new van for their maiden voyage, she had a pretty big smile on her face. I guess that means she approves. On our way back to the facility, we made a pit stop by our apartment so Alison could check it out in person. It seems like she approved of it too. When we got back to the facility they got her a shower almost right away - that always feels nice. Then she laid down and right now is sleeping soundly. I'll stay with her again tonight - it is slumber party Saturday after all. This time it's more slumber than party, but that's fine. This morning I went with a friend over to Topeka and picked up the standing frame. It seems to work just fine, so hopefully we'll make good use of it. : ) But it's good to be out if the hospital and back somewhere familiar. We were welcomed back by some of our favorites at the facility, so that was comforting. Thanks for the continued support.
Friday, October 5, 2012
So we didn't get out of the hospital today as we were hoping to. The doc wants one more day of stability before discharging. So we're back to planning for a discharge tomorrow. She still has quite the cough, but that's to be expected though. My mom got to town this afternoon so that's been good. Tomorrow I'm going to Topeka to get a therapeutic standing frame for our apartment. We were considering buying one ourselves because the facility where she is doesn't have one and we're about to that stage in her recovery. So we got wind of one in Topeka for free! It will allow Alison to load bear through her legs and begin building muscle tone that will hopefully assist with walking again down the road. And we're in the home stretch for actually coming home too. We received word that we're close to taking delivery on some of our equipment for home today as well. Hopefully we're about a week or two from having that ready. So things are progressing. The down side is that Alison hasn't had any therapy for two weeks, so we'll have some ground to make up there. But thanks for all of your continued prayers and support.
Thursday, October 4, 2012
Well Alison's feeling somewhat better today. Her cough persists though and is still very uncomfortable. But her fever has stayed away. She's still on meds and there's still some fluid in her lungs. But they're saying we should be able to discharge back to the facility tomorrow afternoon as long as the fever stays away. As far as the cough goes, they say it could linger for up to month. That's going to be terrible if that's the case. If you guys could pray specifically for the cough to clear soon, that would provide tremendous relief. As it is, it's really bad and makes resting especially difficult. Thanks for your continued support.
Wednesday, October 3, 2012
Well it seems like Alison might finally be starting to feel better. Her fever hasn't spike recently and her cough is improving. They're taking another lung X-ray in the morning, but if all goes well, I'd expect they might let us leave the hospital on Thursday. Keep your fingers crossed. I have the van with her pink wheelchair in it ready to go when they say the word. Aunt Sally will be here tomorrow with her during the day so that should be nice. Alison had a nice visit tonight from a couple friends and is sleeping soundly now. I'll be hopefully doing the same soon. Thanks for the continued support.
Tuesday, October 2, 2012
Well we're still in the hospital. Alison's had a fever again today so they started her on some new antibiotics. Her lungs still have some fluid in them, so it could be some slight pneumonia too. But they're continuing with the breathing treatments and it seems to be helping. We've had a decent evening together though. She didn't require extra meds so we were able to "talk" a bit and that was nice. She's already resting well this evening and hopefully gets a full night of sleep. I'd guess if all goes well we might get to leave on Thursday. But we'll see. Thanks for your continued support.
Monday, October 1, 2012
After a successful procedure early this afternoon, Alison has been resting most of the rest of the day. She's still receiving breathing treatments and coughing some in between, but it seems like it might be getting better. I'm hopeful we'll be heading home tomorrow or Wednesday. While she sleeps, I'm thoroughly enjoying watching the Bears beat the Cowboys. That doesn't happen very often so I have to enjoy it when it does. Thanks for your continued support.
Just so everyone knows, Alison's procedure is finished and went really well. She even gave me a big smile right afterward (good drugs). But she's resting well and prob will for a while. I'm going to go pick up our van this afternoon. Never thought I'd be so excited about buying a minivan. : )